Parents & Caregivers

ACPA Family Services

ACPA Family Services provides crucial information for families, patients and professionals.

Cleft Lip & Palate Association (CLAPA)

Working to support, connect and empower everyone affected by cleft in the United Kingdom.

Feeding Flock

Dedicated group of researchers and healthcare professionals who partner with families to nurture children with feeding difficulties.

Feeding Matters

Furthering advances in pediatric feeding disorders by accelerating identification, igniting research, and promoting collaborative care for children and families.

Graham's Foundation

Delivers support, advocacy and research to improve outcomes for preemies and their families.

Hand to Hold

Supports families before, during, and after a NICU stay and infant loss by providing resources for the whole family, and most importantly, one-on-one mentoring from someone who has been there.

March of Dimes

Helping mothers and babies get the support they need to be healthy and strong.

Mended Little Hearts

Providing hope and support to "the littlest heart patients of all" and their families.


Advocacy/Network organizations for parents of premature infants.

NPN NICU Parent Network

NICU Parent Network is a network of organizations offering support to families of premature infants. NPN provides a platform for NICU Parent Leaders to come together as a collective voice representing the needs and best interests of NICU families in all facets of healthcare policy, care guidelines, advocacy, education & family support.

Preemie World

Created to help bridge the gap between parent and professionals in the NICU, at home and beyond.

Smile Train

An international children’s charity with a sustainable approach to a single, solvable problem: cleft lip and palate. Smile Train is committed to treating the whole patient through programs that provide access to important comprehensive cleft care services.